hansrue ([info]hansrue) wrote,
@ 2005-12-27 22:04:00
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Anti-bio
First off, I hope everyone had a fantastic holiday and you're making crazy plans for New Years. Our holiday was very nice and our New Year's eve will be boring, but that's perfectly fine with me.

A few years ago (probably right around the time Sonja was diagnosed with cancer), I read one of Dr. Andrew Weil's books...probably 8 Weeks to Optimum Health. Very interesting book, in particular the section on anti-biotics. I've been scared of them ever since. If you think about it, the term anti-biotic means "against life". Of course, the aim in prescribing these anti life drugs is to combat the foreign bodies that have invaded your system. But, anti-biotics cannot differentiate between good life and bad life. Those drugs always mess up my entire system and until recently, I've refused them for whatever ailed me unless what ailed me was pretty severe. I've had more anti-biotics pumped through me this year (just the last 6 months really) than I've had in me in the last 10 years combined. I appreciate what they're trying to do, but the long list of side effects that each variety sports invariably latch on to me like there was some reward for making me sick. I'm just coming off of a 12 day cycle of Levaquin and I've really had a tough time of it. I've been extremely dizzy, had no energy, had severe abdominal pains, etc. I'm taking (and have been taking) pro-biotics such as acidophilous to try and reestablish my system's microorganisms, but so far it hasn't helped. The infection in my back has cleared up for the most part, but it did so at the expense of my overall feeling of wellness. My dad's having to take Levaquin at the moment for an infection in his foot and I'm sad to say that he's having a rough time of things as well. Is it really worth it?

I've yet to refrain from sharing my experiences with this illness, no matter how gross the subject matter, and I'm not going to stop now...so...GROSS OUT ALERT. If you're easily grossed out, skip ahead now. I've been having some pretty bad gagging episodes, usually in the morning or after I've just eaten a bit too much. I seems like food somehow gets trapped in my esophagus and can stay there sometimes for hours before it decides to simply come back up. It's not throwing up, because there's no stomach acid involved. It is just as uncomfortable as throwing up though. I'm usually relieved a bit though to get it out of me, no matter how gross it may be. The pressure of gagging is usually so intense that it makes my nose bleed, brings tears to my eyes, and pops out every vein in my forehead. It's a horrible experience. BUT, what's even worse is the fact that the taste of whatever I gagged up stays with me for HOURS...sometimes days. It's not a taste that stays right there in your mouth, but every time I cough it's there again. We went to Whole Foods a week or so ago and I sampled a cube of cave aged gruyere cheese. Just ONE cube (amazingly good cheese!). Two days later I had a gagging fit and all I could taste was that damned cheese. It didn't taste bad or old...in fact, it tasted as if I'd JUST swallowed the cube 15 seconds earlier. So, while the whole taste thing does sound really nasty, it doesn't taste old or rank. Very strange...don't know why I felt like I needed to share that, but maybe it'll make sense to someone out there who's been through an esophajectomy.

I head back to Houston on the 4th to figure out this whole esophagus leak situation. I'm optimistic that it's healed on its own, but I've not really been overly lucky with this leak thing thus far. If it is leaking, I'm afraid that may mean more surgery or more tubes. This last tube honestly set me back 3 weeks. Easily. I was feeling like I was on the mend before that last trip and came back feeling like dirt...painful dirt. I still have really bad pain where that damn tube was and I just got a bill for $3800 from the hospital for yanking the thing out.

OK...enough of my groaning. I've really had a tough couple of weeks and it's pissed me off to a large degree. It's hard to be positive and productive sometimes when you just don't feel good.

Here's hoping for a fantastic '06 for all of you and maybe me too! Best wishes to you all,

Hans



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hang in there
(Anonymous)
2005-12-28 04:25 am UTC (link)
I understand it is hard to be optimistic when you feel lousy. I am praying hard for you and yours. A pleasant new year's to you and yours.

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Wishing you the best in 2006
(Anonymous)
2005-12-28 05:34 am UTC (link)
We truly regret that you are having such a difficult time. We continue to pray that God will keep his healing hand on you.
We simply cannot know what you are going through. We don't know you personally but, We care deeply about you and your family.
May God bless each of you!!!!

Neighbors in Jasper

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Posting
(Anonymous)
2005-12-28 05:41 am UTC (link)
Hans, thanks for the latest update. I check frequently to see if you have posted anything to let everybody know how you are doing. I don't take antibiotics very well either - I had a bad experience taking Cipro. I hope you get encouraging news when you go to Houston. Happy New Year to you and your family. I shop at Whole Foods in Marietta - I love to shop there.

Take care and keep us posted.


Lynda Dockery
Kennesaw

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That's really gross, Hans.
(Anonymous)
2005-12-28 06:55 am UTC (link)
...ick...the thought of gagging up 2 day old cheese really creeps me out. I hunch up my shoulders and do an imitation gag of my own. Cheers to you for still being able to compliment the cheese, though.

Can't believe Christmas is over already. Good thing war didn't break out on the season's greeting/happy holidays/merry christmas pc front...I found it deeply disturbing that controversy and boycotting came about over that. Hey, if the cashier at WalMart who makes little over minimum wage, still has enough mental stability in her, after the 37th price look up, the 54th refund, the 82nd child crying, the 17 yelling, micromanaging supervisors, the $94 the government took out of her 68 hour, $233 check, and the loser boyfriend who called 4 times in the past 45 minutes to tell her to remember the cigs before she gets off work, to still be greeting at all by the time I get there, she can tell me anything she wants, even if it's that she hopes Santa stabs Jesus in the leg with a broken bottle of champagne because he took a piss on Rudolf's list of New Year resolutions (of course his first is to stop saying "Merry Christmas", 2nd is to stop snorting coke because it's turning his nose red...), so not to be expecting Jesus or Santa on the 25th because one will be in the hospital getting his leg cast, the other will be hiding from God's wrath ("oh shit Prancer, we gotta get outta here, I just stabbed Jesus, God's gonna be pissed!"). I'd say "Thanks, Happy Weary Willie Day!", and walk away thinking..."she was sooo friendly...they should give her a raise..."

Anyhow, I think enough's been said about that...Christmas was fun this year. It's our first with Miles, how exciting. He was a champ. He's been sick this past week, but he's not letting it get him down too much. What a great baby he is. I'm amazed every day at how lucky we are to have such a laid back child. He's very personable and loves everything it seems! He's a keeper for sure!

I hope you get some good news in Houston on the 4th. It would be a great way to start out the new year, huh? Maybe everything will head back to normalacy during 2006...that's what I'm hoping for you. Good luck, and keep us all updated.

Jessica

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Good Morning
(Anonymous)
2005-12-28 02:47 pm UTC (link)
And I do mean good morning. Surely it will be your time for good news on your next trip to Houston. In my humble opinion, if anyone deserves a bit of good news it is you and your family. So, without further ado, as I continue to pray for your good health, I wish ALL of you a very Happy, Healthy New Year and God's special blessing.
Mary Smith

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Next Year Has To Be Better
(Anonymous)
2005-12-28 03:16 pm UTC (link)
Surely, next year has to be better for you! Really sounds nasty, all the things you have been through. We just found out one of our neighbors has stomach cancer. I thought about telling him about your journal but my husband said no, it might upset him too much with all the things you have gone through. We have heard his was found early. He has had surgery and now is taking chemo which he is having a rough time with. Anyway, let's hope the worst of all your treatments are over and everything will check out normal on January 4th. Happy New Year to you and your family, hope your Dad feels better too!

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Stay Strong
(Anonymous)
2005-12-28 03:25 pm UTC (link)
Hans, You have every right to groan, with what you have been through these past months. We continue to pray for you and your family. We know God will give you strength to get through this. He does not give us more than He knows we can handle.

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Poor Hans
(Anonymous)
2005-12-28 06:26 pm UTC (link)
I am sorry. I hope they figure it all out and that you'll be fighting fit soon. No leaks. No more antibiotics, etc.

This may sound trite or cutesy or just plain wrong, but do you have something to occupy yourself with when you're feeling crummy? I probably mentioned before that I have a chronic illness. Started really changing my life about 6 years ago. Over the years I've written poetry, listened to music and more recently, started sculpting with pulymer clays to keep me "going," when I feel like crap. Some nights of bad pain, I've sculpted right through to dawn. It works for me. Music helps too, and usually I'm doing both - music while I sculpt.

I like to cook, too, but sometimes that takes more "spoons" (energy) than I have. (This probably doesn't apply so much to you but it's been VERY helpful for me to explain what it's like to have my type of illness: http://www.butyoudontlooksick.com/2004/11/the_spoon_theory.php )

Anyway - it works for me to have that "something" to do that draws me away from the pain. I'm a prayin' kinda gal, too. That works.

All the best, Hans.

Cindy in PA <><

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Wishing for better days
(Anonymous)
2005-12-28 11:58 pm UTC (link)
So very, very sorry you are having such a rotten time of it and hope and pray for better days soon. Can't wait to get good news from Houston. Hope your dad is better now. Let us know how he is doing. Love and prayers from your home town.

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(Anonymous)
2005-12-29 01:33 am UTC (link)
Well you sure have had your share of crap this year and hopefully 2006 will bring the shovel to rid yourself of it. I'll be thinking of you next week when you're in Houston, good news may be just a plane ride away. Sure hope that Joe is on the mend soon too!
Stay strong.....

Yankee Doodle

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(Anonymous)
2005-12-29 03:25 am UTC (link)
Here's to a happier, HEALTHIER New Year!!! All good wishes to you and your family. Peggie Chapman

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Medicines, Period
(Anonymous)
2005-12-29 04:50 pm UTC (link)
Don't worry about grumbling. Sometimes one just has to do it.
I was so glad to read something from you again as I figured you were having a bad bout. However, I am glad you were home for the holidays and were able to share with family some of the festivities.
My Dad owned Darnell's Pharmacy, located at the spot at which the Jasper City Florist just moved. We did not take and were discouraged to take too much medicine, only when absolutely needed, so I understand your reluctance to taking the antibiotics. But sometimes you've just got to take them and hope one will fit with your feeling good. I hope you and your father will soon be off this particular antibiotic and afterwards both will feel so much better.
Our prayers travel with you to Houston to hear the good news that you have mended. Know you are always in our thoughts. Hettie

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(Anonymous)
2005-12-29 05:12 pm UTC (link)
I would love to see you do a cookbook. I have tried all of your recipes from the food network and they are the best. My husband's favorites are the chipotle ribs and the schnitzel. He's a good German boy, so we sometimes use pfifferling in the sauce--great! His boss claims to cook the best ribs in Atlanta, but he thinks yours would win hands down. Thank your for your delicious recipes.

Hang in there. We are praying that you have a good new year.

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2005--A bad year
(Anonymous)
2005-12-29 09:14 pm UTC (link)
Thanks for being honest and "grossing us out." Sometimes that is what we need--a big dose of "real" reality. Not the junk they put on TV. Your journal is truly an honest "survivor" series. I pray that 2006 will reveal you as the ultimate winner.

May God bless you on this journey.

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(Anonymous)
2005-12-29 09:39 pm UTC (link)
Thanks for keeping us posted. Worry about when you do not. So sorry you are still having problems with infection. Anti-biotics can sometimes be worse than the cure, but are still necessary. Hope you and Joe soon will be off them and on the road to recovery. You have been through so much that it is time you receive some good news ....hopefully on your trip to Houston.

Wishing you and all your family a Happy and Healthy 2006.

The McNairs

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Your so gross, but I love it!!!
(Anonymous)
2005-12-29 11:03 pm UTC (link)
Ok I get tickled just listening to you on the phone, but reading your postings makes me bust a gut!! Sorry no Pun intended!! I know that your going to make it through it and we'll pray that when you go to Texas that they'll finally give you a clean bill of health. If not I just might load the Honda and go have a few words with them!

We need you back here(which should be the least of your worries)! Its just not the same without you:-(

Talk to ya soon!
Karena
ETC3

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it has to get better from here
(Anonymous)
2005-12-30 02:33 pm UTC (link)
Hey Hans and family I know you have had a very hard year in 05 and I do hope and pray 06 is a little easier for you.

Stephanie Ray

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(Anonymous)
2005-12-30 09:53 pm UTC (link)
Hello:

I may not ever meet you, but I am an open heart recovery nurse that cares for patients very similar to you. Our surgeons operate on various patients and do some esophajectomies. They experience the same things you are going thru, keep up the good work towards getting better , IT IS VERY HARD WORK!!!!!

Best wishes for a well 2006

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(Anonymous)
2005-12-31 01:18 pm UTC (link)
I avoid antibiotics because of the side-effects and because I don't want them mutating to the point they don't work any more. But, they are life-savers when you have infections, and that's where you are.

As for the icky descriptions, go right ahead. You have every right and even obligation to share what you are going through. It helps those of us who aren't and haven't gone through it to understand. It comforts others in the same situation to know they aren't alone. You're a brave man and an inspiration.

Sharon Nardo
Jasper, GA

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Still Reading
[info]abbyladybug
2005-12-31 01:46 pm UTC (link)
I'm glad you're not chirpy and upbeat when you don't feel like it. That always bugs me. I prefer honesty. I hope so much that your 2006 is better than your 2005. You're still here, and that's a good thing.

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(Anonymous)
2006-01-01 04:32 pm UTC (link)
I'll keep you in my prayers for your return trip to Houston. Just keep looking to the future as you want it to be and aim for it. These set backs are big bumps in the road from your end but your doctors are more familiar withy it than you and will know what to do. God will be with you. JD in Jasper

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Sorry you're having a hard time.
(Anonymous)
2006-01-02 12:02 am UTC (link)
Man, I sure hope this is the last thing you have to deal with. You have to be one of the toughest people I've ever "met".

Hope you were able to enjoy your New Year's Eve.

Still in my prayers,

Mary & Chip

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Good Luck in 2006
(Anonymous)
2006-01-03 04:16 pm UTC (link)
Hans,
I am sure that you are dreading that trip back to Houston,but keep focusing on the positive. You are cancer free(NED). That is the main thing!!

I have enjoyed your posts. None of us are going to get out of this world without experiencing something. We all have our own trials. You are amazingly strong ,and reading your posts, and remembering how strong you were through yours, will always be an inspiration to me.

As far as antibiotics go. Thank goodness we have them. I have had many ancestors, as I am sure we all have had, who died very young from flu and pneumonia before antibiotics to fight them were developed.

We enjoyed a nice New Year's Eve dinner at the Woodbridge. I missed seeing your Dad, as he was busy in the kitchen,but you Mom looked beautiful as ever, with her wonderful smile, and the food was fantastic. It was a wonderful New Year's Eve.

Good Luck,
Hopefully you have rounded the corner and will soon be on the mend.I'll be thinking about you on the 4th.

Jasper resident

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C. diff
(Anonymous)
2006-01-03 08:00 pm UTC (link)
Although you do not know me, some very good friends of mine and of yours directed me to your site months ago.

As I have read your journey, it sounds like one I will be on if ever get cancer and need the cures. As it does run in my family very good chance.

But one infection you did mention, may have solved a mysterious aliment I got two years ago..the C. diff--followed by Gout-yeast related.

As a 40 year old woman it stumped all..no signs of infection, so Emergency room did not give me any antibotics...fine with me as I get the exact same horrible side effects..But as I was in such horrible pain and heart problems the following day-drove to Atlanta internist-who put me on Amoxi and Flagyl. Got the fever and quit Flagyl. But after two weeks felt much better well except for all those side effects and add Gout!

And had all of those lovely gastro tests done to find nothing.

But at this same time my elderly father had an infection being treated..yes I believe it was for C. diff. And we had been staying together.

It can be actually contagious to some people according to the medical site. And do believe this ends the mystery.

I have not had a reoccurance and my gout did not return.

So, I want to thank you so much for sharing your stories..I believe they have answered a medical mystery for me and now know what medicines to be careful of in the future.

And will pass on your wisdom to others.

May 2006 bring you much blessings.

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(Anonymous)
2006-01-04 12:33 pm UTC (link)
I hope this will be a very happy new year for you all. Good luck in Texas tomorrow. Still thinking about you and wishing you the best and that this thing will soon be over. Valerie

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Hello to You & Family
(Anonymous)
2006-01-05 05:34 pm UTC (link)
Just read your December 27 entry, and in spite of the "gross comments," I always find your messages so interesting and informative - - and with a sense of humor. I don't know how you do it, considering how rotten you've obviously felt for quite sometime. Hope things are going well at Anderson and you will return to Jasper very soon. Sorry to hear about Joe's foot problem. Here's hoping he's also feeling better.

We think of you so very often, Hans, and continue to pray for a healthy future for you. Your spirit is so inspiring and uplifting. Continue to take care and know there are so many folks keeping you and your family in their prayers. Thank you for sharing with us.

Carol & Dan Scoggins (Friends of Tom Eubanks, and we have the little mountain place in Bent Tree)

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Admiration
(Anonymous)
2006-01-18 01:09 am UTC (link)
You are in my prayers. I admire your sharing this experience with the world. I'm not sure that I could have. Hang in there.
Sara Fowler

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