hansrue ([info]hansrue) wrote,
@ 2005-10-25 20:36:00
Previous Entry  Add to memories!  Tell a Friend!  Next Entry
A day off from radiation...
Hello friends...

At about 8:30 this morning, I received a call from the radiologist's office. They asked me to NOT come in today...I had a day off! Yesterday they did a type of imaging on me called respiratory gating. A strange, milky-transparent looking plastic box was taped to my stomach and I was put into a CT scanner. For about half an hour, a special laser guided camera recorded my breathing by watching the box on my stomach rise and fall with my breath. All the while, the CT was taking shots of my chest. The idea is, by using this special box, they can better time the radiation treatments to coincide with my breathing. Since overexposure to radiation can fry your lungs, they want to use this technique to only shoot the radiation when I exhale. So today, they were figuring out the results of yesterday's test so that tomorrow I'll begin the new treatment. Of course, I'll have to make up the missed treatment (just like a damned test at school!), making my final day of treatment November the 16th.

I had a pretty good weekend...it seems that my body starts to refresh itself the minute the treatments stop. Monday's radiation kicked me pretty hard though. Within 5 minutes of the treatment, my gut was on fire and it felt like Andre the Giant was squeezing my insides. The Dr. warned me that the effects of the radiation are cumulative. I had shed a few more pounds...down to 174, exactly 40 pounds less than the day of my first surgery. I have to increase the rate of my feeding pump to get some more calories, and when I DO feel like eating, I need to. He said I still may drop a few more, but we need to keep the weight as steady as possible. I've completed 9 treatments...16 to go. Can't wait to get there...

Last night I was so weak that I couldn't even open the cap on my daughter's Fresh Fairy Sparkle Gel (that's the actual name of her toothpaste...go figure). I've also been having some pretty severe coughing/gagging sessions. I think I caught a bit of the cold that cycled through my family. I'm usually the last one in the chain, acquiring their germs about a week after the first sign of it.

I don't think I chimed in my 'review' of the Corpse Bride. Excellent! I'd give it a 4 out of 5...a little slow on the front end, but the music is perfect and the whole movie is just beautiful. The kids loved it. It's nice that I feel better on the weekends...I wouldn't be able to sit through a movie after a treatment. No way.

Because my illness happened within the first 12 months of my employment with ETC, the company that handles my long term disability benefits (I hate the term 'long term'...I plan on being back to work in January!) is launching a 'mandatory investigation' into my case. I had to fill out a questionnaire that would make anyone feel like their trying to con someone out of something. The questions are literally degrading and almost downright accusatory. But, I have to fill it out...it's required after 90 days leave. What really sucks is that my salary drops to 70% (still better than nothing...don't get me wrong), right as medical bills are swarming and christmas looms. We'll get through it though...just another speed bump. The whole "prove you're sick" paperwork is pretty crappy though...pretty crappy.

OK my friends...much love and respect to you all.

Hans



(Post a new comment)

Medical technology is amazing
(Anonymous)
2005-10-26 02:12 am UTC (link)
That whole thing about synching the radiation to your breathing - very cool when you think of it. And insurance and medical liability in the 21st century stinks. I've had to fill out a few of those questionnaires in my day. SHEESH! Could be worse - could be a government form. ;)

I am glad you're feeling well enough on weekends to enjoy things with your family and pray that you are not getting a cold. You don't need that. My great-niece, who is one of my "special people," woke up with a cold yesterday morning. Normally, if she has to miss school, she likes to come here and hang out with me. I'm more or less bed-ridden and a sick day just means snuggling with me, usually. But at 11, she's suddenly more aware of things and when her mom (my niece) said, "Do you want to go to Aunt Cin's for the day?" she said, "No, Mom. I worry about Aunt Cindy - she has enough problems already. She doesn't need my cold."

That's how we all feel about you, Hans. We worry about you - you don't need a crummy cold.

All the best,

Cindy in PA<><


(Reply to this)


(Anonymous)
2005-10-26 02:37 am UTC (link)
Prove your sick! Send them some puke...or bile from the feeding tube.
Well, that was hostile, wasn't it :o)

You are half way there, man!
That's brilliant.

You.Can.Do.It!

Donna in Wisconsin

(Reply to this)

Good Thoughts for You
(Anonymous)
2005-10-26 02:51 am UTC (link)
Hans, concentrating on the positive seems like the way to go and I like the fact that your body begins feeling better as soon as you stop the treatment on Friday, your weekends are better for you and you are going to finish your treatment before Thanksgiving, and we'll all be thankful for that.
My husband and I are heading home to Jasper from our extended RV road trip cross country. Hope to learn you are feeling better and better when we get back. That's what we're praying for. Hettie Young

(Reply to this)

Can't wait till tomorrow
(Anonymous)
2005-10-26 02:58 am UTC (link)
Well, I Lysoled(if thats a real word) the office before I left today and will do it again tomorrow before you arrive. I think I could have possibly inhaled a little much of it though, my lungs are a little sore!
He he...

Everyone is excited to see you & the family!!! Hope you have a great day tomorrow and ya'll be careful!!

Karena

(Reply to this)

Treatments
(Anonymous)
2005-10-26 04:00 am UTC (link)
Hans, thanks for the update about all the things the doctors are doing to you. It all sounds brutal but we know you will survive it!!

I have been dealing with the new Medicare drug program for my Mother - here again, the more confusing they can make it, the better they seem to like it.

Keep looking forward to the end of the treatments.

Lynda Dockery
Kennesaw

(Reply to this)

Day off, yeah!
(Anonymous)
2005-10-26 12:04 pm UTC (link)
Hi Hans,

I am so glad you did get a break from your treatment, even if it does mean having to make it up. I cannot imagine how badly they can make you feel, and I am pleased to see that you can at least still post on your journal. Keep hanging in there...better days are ahead!

Lisa, ETC

(Reply to this)

You are getting there.
(Anonymous)
2005-10-26 03:36 pm UTC (link)
Hi, Hans,

Yes you definitely are getting there. Nov. 16 is just around the corner. I still read all your entries; it is such a nice way to communicate. It can't catch you at a bad time or wake you from a nap.

I just wanted you to know I am off to Maryland tomorrow to help the children move. Sandy Ellis will be there also so we should be able to turn out the labor. Sean is very much like his father; his frustration level is quite low and moving has never been one of his shining moments. Keep a good thought for this move as we will have you always in our thoughts. Wonder what you have planned for next weekend.

Love to all the family,

Jean Curran

(Reply to this)

Glad you are having Better Days
(Anonymous)
2005-10-26 04:05 pm UTC (link)
So happy to hear you had a good weekend. Can you believe the ability to time your treatment to your breathing? That is impressive, to say the least. It's great that the end of treatment is in sight. When that time comes and you are able to say "I feel great and give me something to eat" there will be a collective smile offered up from all of us. Love and prayers from your hometown.

(Reply to this)


(Anonymous)
2005-10-26 06:50 pm UTC (link)
I know the Weihnachtsmann knows just where you and your family lives. You all will be blessed with a great christmas.

(Reply to this)


(Anonymous)
2005-10-26 08:23 pm UTC (link)
Hans and family, Thank you for the update. It's on my daily schedule now to check in on you! As I read your entry today, I thought that sometimes I am speechless at what you are enduring. I want to have to magic words to send to you to make it all better but that's not going to happen. You have to walk through this season of your life and hopefully know that at the other end you will be a stronger person because of it. Can I share with you a different take on Psalm 23? It's from The Message Bible and I've taken some liberties with the words but the essense is there. Also I've added some comments in parentheses too!

God is my shepherd (my guardian, my helper)!
I don't need a thing.
He has bedded me down in lush meadows,
has found me quiet pools to drink from.
True to His word, He let me catch my breath (your weekends and surprise days off!) and send me in the right direction.
Even when the way goes through Death Valley (surgery, chemo, radiation, etc!) I am not afraid, because He walks at my side (as do all your support system and journal friends) His trusty shepherd's crook makes me feel safe and secure.
He serves me a six-course dinner (your feedings and things you are able to eat,as well as all the unexpected things that bring you joy) right in front of my enemies (those nasty cancer cells and those stupid people you are investigating your illness)
He revives my drooping head (when you can't open your daughter's toothpaste tube)...Your cup brims with blessings (your family, your friends, your will to fight this illness!)
God's beauty and love chase after me everyday of my life (look at how He's provided you the the strength to get through what you've dealt with so far!)
And I will dwell in His protection forever!

Hope you don't think this is too stupid. But I find when I don't have the right words, God does.
Praying for you in chilly, snowy WV.
Pam

(Reply to this)


(Anonymous)
2005-10-26 09:56 pm UTC (link)
Why don't you print off this journal as your 'prove you are sick' proof ?
Sending you Love and healing thoughts and wishes,
xxx
Lyn

(Reply to this)


(Anonymous)
2005-10-27 12:28 pm UTC (link)
Insurance companies are a pain in the butt! They are, afterall, a division of the government.....

Hope you are having a good day.

(Reply to this)

LTD
(Anonymous)
2005-10-27 06:39 pm UTC (link)
Yes, we pay all this money for insurance but they never want to pay when we have to collect. We almost beg to get anything medical approved and we pay a huge premium because we are self employed. I can just imagine the kind of questions on your long term disability form, it is degrading. Don't they know you would much rather be working and completely healthy right now? Oh well, just things you will have to deal with, don't let them get to you.

Hoping November 16th comes quickly!

Dave and Marty "Cad Club"

(Reply to this)


(Anonymous)
2005-10-28 05:42 pm UTC (link)
Hans, hang in there, it will get better. Glad to hear your weekends are bearable. We think of you and pray that brighter days will be here sooner than later. Glenda Y

(Reply to this)

Well wishes
(Anonymous)
2005-10-30 04:38 pm UTC (link)
Hans,
I got a phone call late one night from my sister Cay telling me about The Food Network Celebrity Chef contest; with kids, job and everyday crazy life; TV isn't something I had much time for. But I was hooked. I only got to view the last 5 episodes. To meet all those great chefs, how amazing. I live in Charleston now and have lost contact with most everyone in Jasper. But I just had to say hello. I thought the squid pizza was ingenious. From one lover of great food to another, my thoughts and well wishes are with you.

Chris (Roland) Clancy

(Reply to this)

Trick or Treat!!!
(Anonymous)
2005-10-31 09:55 am UTC (link)
Hope you got some rest over the weekend and are ready for the little ghost and goblins in your neighborhood. Are Finn and Ella transforming into a couple of little monsters today?
Keep up your spirits and take care of yourself. You are always in our thoughts and prayers as you continue your treatments.

Have a blessed week, love from your CASA family

(Reply to this)

Do you glow in the dark???
(Anonymous)
2005-10-31 03:37 pm UTC (link)
Sure would be quite a scary sight on the "Night of Fright." I heard you had gone "lean" and turned "green." I'm one of your CASA kids, we keep up with you and was glad when you could go home. Everyone should have a home to go to.

(Reply to this)


(Anonymous)
2005-11-01 01:16 am UTC (link)
I'm sure all was getting a bit concerned about not hearing from you. Your WV fan was! So I talk to my son tonite and he tells me about a wedding he attended yesterday (10/30) He reminded me that this was the wedding where you were best man. Said you were there and looked pretty darn good inspite of your weight loss. His names Walt Mays....works at Sharp Top Cove. Great kid. He did Jodi's website for her and helped light the luminaries from the wedding site to the reception. Said it was beautiful. Sharp Top is an awesome place!
Anyway it was good to here you're still out there kicking up your heels. I'm sure you were pretty worn out though, so get some rest.
Let us know how you are when you get a minute.
Having Indian Summer in WV!
God Bless...Pam

(Reply to this)


(Anonymous)
2005-11-01 07:47 pm UTC (link)
It's been a week. Is everything ok? I sure hate that you all are going through all of this. Much love - Valerie

(Reply to this)

Keeping you in my thoughts...
(Anonymous)
2005-11-01 09:22 pm UTC (link)
...and hoping that you were able to enjoy the weekend and Halloween with the kids. Please know you and Amy are in our thoughts and prayers.

Sue from the Jan 2000 board

(Reply to this)


Create an Account
Forgot your login or password?
Login w/ OpenID
English • Español • Deutsch • Русский…