hansrue ([info]hansrue) wrote,
@ 2005-10-21 20:26:00
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Chemo free weekend...
After finishing my 8th radiation treatment today, I went for my standing Friday appointment to have my chemo pump removed. The thing only weighs about a pound and a half, but it's a huge weight removed when I'm free of it. Of course they'll pop it back on me on Monday, but being free most of Friday, Saturday, and Sunday is a real treat. I will still be tethered to my feeding tube at night, but I sleep better with fewer tubes attached. Cool beans.

The radiation has been making me sick, though not really queasy. It's more of a strange burning sensation that makes my whole gut feel rough. I'm hoping that my weekend reprieve from the stuff will give me a break from that sensation. It literally zaps my appetite. It's very hard for me to think about food, and that's totally alien to me. I don't know what I want to eat (or really CAN eat) until I see it. And immediately after eating, I just can't stand to think about anything edible. Not even a mint. I know it's all temporary, but it's strange to have spent your whole life thinking about food to simply not being able to tolerate the thought of it.

My cousin in Germany and his girlfriend (should be wife)sent a wonderful care package to the house yesterday filled with German candies, a cookbook, and some other goodies. They sent along 2 bags of the original Haribo gummi bears. My Oma used to send packages to my sister and I when we were children, and seeing that gold foil package of the bears brought back those memories. My sister Sonja would fight me for the candy...she was a SERIOUS candy consumer, imported or otherwise. She always had some Spree hidden in her car or in her purse. I've yet to encounter another sweet tooth like Sonja's.

For those of you who didn't know Sonja, she lost her struggle with breast cancer last year. I think about Sonja every day...not in a cancer way...but things like her love of candy, her near clinical ability to contract car fever (and then share it with me...she must've owned 15 different cars in her short life), her razor sharp wit, etc. I do wish I could share my cancer experiences with her and more importantly learn from hers. She was very secretive about her disease and the idea of a live journal like this one would not sit well with her. Then again, it may just have been the perfect tool for her to open up about her struggles with the disease. Hmm...I think I'm craving some candy now. Thanks Sonja...I need the calories!

I also received a nice care package from Dan and Steve at the Food Network. They even sent me some Hominy!

I've received so many cards and gifts and simple notes (electronically or on paper)...I cannot thank you all enough. I try and keep things up and cheery, but as you must know, there are days when I simply hurt...days when I wish that I could wish it all away...days when I can't really remember being un-sick. The cards and well wishes help SO much with those floundering thoughts or those cloudy moods. Thank you thank you thank you.

Time to unwind. If my health allows, I'm going to take the family to see the Corpse Bride tomorrow. The whole family has been looking forward to it...we're huge Nightmare Before Christmas fans and the kids can't wait to see this film. We did manage to see the new Wallace and Grommit film last week...it's freakin' brilliant! HIGHLY recommended.

Best wishes to you all...

Hans



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Think of you often, Hans
(Anonymous)
2005-10-22 01:02 am UTC (link)
And I appreciate your ability to share your pain and hope, your joy and sadness, all at the same time.

I lost a sister, too, and I think of her so often, in much the same way. (She died with cancer, too, so I also have that in common with you.) Although we have lots of sad memories, we have to consciously think about those. The spontaneous ones are almost always funny or happy or sweet. God blesses us tremendously that way, doesn't He?

Will continue to pray,

Cindy in PA<><


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Drink
(Anonymous)
2005-10-22 01:07 am UTC (link)
Hans, you don't know me but I have been reading about you starting with the Salem's Message board. My son had a cancerous brain tumor. He had five weeks of radiation. It effected his vocal cords and he was unable to eat. We managed to keep him with enough calories so that he did not have to have a feeding tube. When you are able there is a good shake that could help with calories. You use powered milk but add milk instead of water, this adds calories, find your favorite flavor of carnation instant breakfast add a package to the milk, then get you choice of Haagan Daz ice cream (it has the most calories I could find in an ice cream) add two big scoops. Once all of this is mixed it is somewhere around 800 calories. Greg drank at least one a day and used booster and nutriment to supplement for other times of the day when a meal would be eatten. Good luck. Greg has been cancer free for 5 years this November. It is a long hard stuggle but you have lots of love and prayers supporting you. Lynn

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Wishes for a good Week end
(Anonymous)
2005-10-22 01:49 am UTC (link)
Thanks for clarifying (for me anyway) the chemo treatment procedure.
Here's hoping for that good week end and getting to the movie with your family...also for fewer and fewer down days.
Good night and sleep well tonight. Mary Smith

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(Anonymous)
2005-10-22 01:59 am UTC (link)
Hey Hans, Checking in with you often, although I dont always post a comment. Your courage and ability to face this and put it in writing literally leaves me without words some days. As you may or may not know cancer has direclty affected my life through both of my parents,and the resulting effect has left me literally afraid to say or even nearly type the word. Your ability to face this ordeal with such bravery has really helped me begin to reslove a paralyzing fear I have concerning this disease. I know this journal is an avenue for you to deal and cope ,but also know that you are also helping people like me. Keep the faith,each day is a blessing to us all.
Enjoy your weekend. Nancy C.

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chemo free -unplugged
(Anonymous)
2005-10-22 02:04 am UTC (link)
What a beautiful message Hans. I so widh we could ease the pain you are going thru. I hope you and the family enjoy the movies and thanks for the Review on Wallace and Gromet.I love them. Have a blessed weekend. Jackie Bauer

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schtuff....
[info]dentednj
2005-10-22 02:19 am UTC (link)
well, u probably dont have time to read alot of ljs, but i had mentioned i saw wallace and grommit the other night too... it really was funny wasnt it? i think i laughed the most, and my hubby had a permanent smile on his face, and my son enjoyed whatever he could understand...sight gags mostly...he felt so grown up going to a night movie instead of the daylight movies he has seen...he is almost 5 (halloween bday), and we are really starting to enjoy the personality growth we see now....we are a unit of three...it really feels like that to me....a tight set of three....:oD

i watched the food network tonight while building lego robots with my son, and saw a couple new shows, and new peeps....i thought of you on and off, esp. with the new fellas shows... wondering what it would be like to watch you cook and tell... (ooooooo! thats the title to your show! Cook & Tell with Hans!) get it! instead of Show & Tell? nudge, nudge, wink, wink....lol...its yours if ya want it... would love to see your fun self chatting and cooking....

anyway, that damned channel always makes me hungry, so i had to break to go make an early dinner...lol...

if you know alot about chocolate, i would appreciate any suggestions for sources of great dark chocolate here in the US, that doesnt cost an arm and a leg....

gentle cyber-hugs, denise t.(NJ)

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Better tomorrows....
(Anonymous)
2005-10-22 02:21 am UTC (link)
For those of us who check your live journal daily and see that you haven't posted, we kinda figure you've had a not so good day... then we send up a prayer and ask that you have a better Tomorrow.

By the way... that hominy sounds pretty good!

Enjoy your weekend with your family!

Keeping you and your family in my thoughts & prayers!

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(Anonymous)
2005-10-22 03:10 am UTC (link)
Hey guy...when ya come back from the movie, stop at the 4 way in Tate...there is a bag of boiled peanuts with your name on it waiting for you.

I only hope I can deal with life's curve balls as well as you do. Inspiration is a small part of what you give us. Thanks guy.

Bob Hayles

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I know how you feel!
(Anonymous)
2005-10-22 03:19 am UTC (link)
Hi Hans! I've written before about my experience with gastrectomy. I also had radiation. I swear, reading your entry today actually made me FEEL that "burny" feeling I had during radiation. I think I subsisted on pink lemonade and noodles(with a tiny bit of butter and a sprinkle of parmesan:) the entire six weeks! And, the stupid Kangaroo feeding pump--making that whirrr noise--not much sleep happening. I would wake up sooo full...and the docs would be saying "eat more"...I asked them "could you eat if you pulled an all-niter at an all-you-can-eat buffet?" So, hang in there. I am thinking of you and praying for you.

Gina gstallis@charter.net

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Have a nice weekend!
(Anonymous)
2005-10-22 01:55 pm UTC (link)
I know it is really tough for you now but it will get better once you finish all those treatments. Hope you have a nice weekend with your family and thanks for sharing your experiences with us.

Dave & Marty "Cad Club"

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(Anonymous)
2005-10-22 03:07 pm UTC (link)
Hey Hans-

Glad that you get to be free of the pump for the weekends, and able to go out and catch movies and do things like that with the family instead of being tied to the machine. Those memories of Sonja sound really great, I'm glad Laura & I were able to meet her when we came to visit a few years ago. Your mention of Nightmare Before Christmas rang a bell, I knew you were a fan, but for some reason I didn't think to tell you about this: http://necaonline.com/nbctcg/ The Nightmare Before Christmas Trading Card Game. Seeing as tcgs are how we met in the first place, thought you might find it interesting. Talk to you soon.

Rich

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(Anonymous)
2005-10-22 04:54 pm UTC (link)
Hans,
I am so glad to hear you are pump free for the weekend, I hope you and your family have a enjoyable time at the movies, I am escorting my daughter and 3 of her friends to the movies tonight to see the FOG, I don't watch scary movies..
I appreciate you sharing your thoughts about Sonja, I know you would love to share your experience with her and let her know you understand how you felt at times as well.Continue doing well as you can and enjoy some chocolate for me.
Earlene Wigington

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No Subject
(Anonymous)
2005-10-22 06:35 pm UTC (link)
I agree Wallace and Grommit was brilliant. Good Luck and Prayers to you.

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I love gummy bears
[info]oglan
2005-10-22 10:11 pm UTC (link)
I just started to read about your life and it's turbulance. I want to tell you what I was always told when the going got tough. As a woman with a stomach re-section in the way too soon future...

KEEP YOUR CHIN UP AND DON'T LOOK DOWN.

I think I would have gotten along well with your sis, I too have a very sweet tooth.It must be kismet. Especially for the Haribo Gold gummy bears. I buy them in bulk and my husband thinks I am wacko, but they are the only kind I will eat.

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my heart goes out to you ....
(Anonymous)
2005-10-23 03:12 am UTC (link)
in the loss of your sister. i lost my mother to breast cancer almost 14 years ago. i, too, am a breast cancer survivor ... 9 years this december. i feel for you .... i feel your pain ... i know what you're feeling. i promise you, this will not last forever. you'll get thru it and one day will be able to look back on your long, courageous journey. there is a reason that god has chosen this path for you to walk. one day it will be abundantly clear on why he has chosen this path for you. you are such a remarkable example of so many people. you and your family will continue to remain in my prayers. keep your chin up! remember, each chemo treatment is one less you have to face. we all love you and are rooting for you. most importantly, remember that god loves you, too.

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Just Monday
(Anonymous)
2005-10-24 12:07 pm UTC (link)
Hans,

I am thinking of you and praying for you all (several) times a day. Have a wonder filled day!

Michelle D.

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(Anonymous)
2005-10-24 12:34 pm UTC (link)
Wishing you and the family well as always. I miss Sonja too and think of her often. Valerie

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hello
(Anonymous)
2005-10-24 02:51 pm UTC (link)
Hi Hans, I found your journal by link on the Salem message boards. Your writing is such an inspiration, God bless you Hans, for having such strength and such an incredible sense of humour in the face of adversity. I will keep you and your family in my prayers. Remember, when times get tough, cry out to Jesus. (fantastic song by Third Day) He'll help you get through it all... praying for you in chilly Canada, Cori Porter.

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(Anonymous)
2005-10-24 04:26 pm UTC (link)
You don't even realize how fantastic it is for you to be out and about seeing movies with your family....I am so impressed that you have the energy !!!! Way to go. You are in my thoughts....along with your family....One day at a time.....You are doing really well and on your way to perfect health.....TAke care.

Susan
from Kirkland,WA.

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Don't catch a cold!
(Anonymous)
2005-10-24 05:08 pm UTC (link)
Hans, you are doing amazingly well with your treatments! For someone who had a ferocious appetite, this is a real switch. It, too, will return with time.

Try to stay away from "sick people"...don't catch a cold!

Love to you and your family from your CASA family

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Keep Warm This Week
[info]jim1411165
2005-10-24 06:39 pm UTC (link)
Hey Hans,

Just wanted to say, like everyone else on here, how inspirational you are dealing with this and thanks again for sharing your experience with us on here too. Glad to hear that you have at least some freedom from the pump and can enjoy a movie with your family. Hang in there my friend, you have lots and lots of us praying for and pulling for you on here. Hope you have a great week. :-)

Jim

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(Anonymous)
2005-10-25 02:09 am UTC (link)
just discovered your wife's site. am visiting my my own sister who is recouping after double mast. (battling breast cancer). i think your wife's work is brilliant, you must be equally so and i wish you the best.

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(Anonymous)
2005-10-25 03:35 am UTC (link)
Hey Hans, I'm still rooting for you here in Aus (but I mean that in the American way, not the Aussie way, which is another thing ENTIRELY!). This treatmeant just goes on and on doesn't it? You must be getting near the end of it now surely.... Keep your spirits up, enjoy the Gummi Bears and get well :)
Hugs to you and yours - Sharon from Brisbane

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(Anonymous)
2005-10-25 03:41 pm UTC (link)
Just checking again today to find your posting from Friday. You are such an inspiration,Hans. God bless your sweet heart. I can hardly bear to read what you are going through; I can only imagine what it must be like to actually be experiencing it. I remember Sonja so well. I remember she was in my ninth grade English class, and one time your dad wasn't pleased with her grades, so we all had a good sit-down-and-talk-about-it. She was such a sweetheart and so brave in her battle against cancer. I know you and your family must miss her terribly. Have you any idea how many lives YOU have touched and are touching each and every day??? As always, you are constantly in my prayers. Stay strong and never forget how much you are loved.

Mrs. C.

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(Anonymous)
2005-10-25 08:50 pm UTC (link)
Hi Hans! I hope you enjoyed your weekend without the chemo pump. I haven't seen either Corpse Bride or the Wallace and Grommit movies...I'll have to find some time to go after the Lions Club Haunted House is over. I know you aren't up to it this year but you have to come next year...I think you would enjoy it immensely! I know you have times when all the dark thoughts come crashing in but remember all the positive thoughts and prayers of your well wishers both here in Jasper and around the world and hold on as tightly as you can to that.
My love to Amy and the kids,
Jan Simpson

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(Anonymous)
2005-10-30 03:59 am UTC (link)
Although I haven't worked outside the home in a couple of years, I have 15 years of insurance geekdom under my belt. Depending on how you set things up, your Long Term Disability benefits might be exempt from taxes. As I recall, if you have taxes taken out of your benefit contributions, the insurance is not taxable if/when you need to collect it. Seventy percent salary isn't that bad if it isn't being taxed. Something to look into anyway. Wishing you good health and a Happy Halloween!

Anne in PA

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