hansrue ([info]hansrue) wrote,
@ 2005-10-15 06:02:00
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Three down...
Well, I've marked off three days on the calendar...roughly an 8th of the way there. I did get sick both Thursday and Friday after treatments...no fun. The nausea and fatigue hit you like someone pouring warm milk over your head...it oozes from an "oh no...I think I'm getting sick" thought and quickly spills all over you. Thursday I as caught without my meds when it hit. Amy said the retching only lasted about 5 minutes, but it felt like 20. Friday I was prepared with my anti-nausea drug and it worked quickly. Because they're radiating my stomach, there's a high likelyhood that I'll get pukey each time, so they've now decided to pre-medicate each visit with a drug called Kytrel. Let's hope it does the trick. After hearing about my attack on Thursday, my mom equipped her car with about 200 brown paper puke bags and trick or treat tub...I think her car is prepared.

I've been struggling with anemia since this medical stuff started back in July. In fact, it was the anemia that led us to the cancer diagnosis. So far I've had 5 units of blood transfused and different times to try and get my levels higher. Yesterday, instead of blood, they administered a big bag of iron. It looked exactly like Coca Cola in the IV bag...no bubbles. The whole infusion took about 6 hours. It's supposed to help with my energy level and lightheadedness, but it may take a few days to fully bind with my system.

With the C. diff infection and it's awful Flagyl treatment coming to an end (I hope...), my nutritionist has given me the green light to eat any foods with exception of fried foods. I'm exercising a rare sense of restrain, however, and am easing into this whole food thing this time. Reading others' experiences on the net, it's amazing that what works for some gastrectomy patients simply can't be swallowed by others. I have a hard time swallowing foods that would seem to be ideal: mashed potatoes, pasta...even yogurt to an extent. The biggest problem is getting full too fast. As soon as you've adequately tested a food to see if you can swallow it well, you're full! That's really why I'm supposed to eat about 5-6 meals a day, but I've not quite hit that stride yet. I'm more grazing when I'm at home. Of course every time I open the pantry, the kids are right there with wide eyes wanting a snack of their own. Luckily, they love healty snacks and are as excited by a little box of golden raisins as one might be with a Twinkie. No Twinkies in our pantry...

I've really been enjoying all of your comments and insights. Thanks for hanging with me through all of this.

Hans



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(Anonymous)
2005-10-15 10:54 am UTC (link)
Thank you for keeping us informed. You would be amazed how much you and your family have become a part of so many lives... we find ourselves inquiring about you and praying for you as if we know you personally. You have entered the hearts and minds of many.

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TREATMENT
(Anonymous)
2005-10-15 11:01 am UTC (link)
I agree with you about the Flagyl. It made me gag it was so bitter. The Onc nurse suggested that I purchase from the drugstore some empty gel capsules-cut the Flagyl in half and stuff it in the gel capsules. What a difference it made-no bitter taste.

Treatment is tough-but how lucky we are to have available those potent, poisonous potions that will rid our bodies of cancer and get us started on the path to wellness.
Offering prayers for your continued improvement-
Gena
WASHINGTON/TALKING ROCK

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Bless you Hans
(Anonymous)
2005-10-15 11:11 am UTC (link)
Your courage never ceases to amaze me. To keep all of us "in the know" about your journey like you do really takes alot of courage. I admire you and wish the best for you. If your outlook is half the battle, you should be a winner. May God bless.

L. Brown

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Good Morning
(Anonymous)
2005-10-15 12:52 pm UTC (link)
Hoping your "two days off" will be as bright and beautiful as it is outside right now. With all that is being done for you, plus your ability to take it as well as you do, surely better days are just around the bend. Anyway that is our hope and prayer. Mary S

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(Anonymous)
2005-10-15 12:54 pm UTC (link)
No twinkies?

and you call yourself an american...

pp

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Immer weiter kämpfen
(Anonymous)
2005-10-15 01:15 pm UTC (link)
Hallo Hans,
es ist Zeit, wieder mal einen deutschen Kommentar hier zu schreiben, oder? Wir schauen jeden Tag, ob Du etwas Neues in Livejournal geschrieben hast und wie es Dir geht. Das Internet lässt weite Entfernungen verschwinden, wir sind so gut informiert, als ob wir Nachbarn wären. Kämpf weiter - hoffentlich können wir nächstes Jahr ein Treffen organisieren!
Meike

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Helping others
(Anonymous)
2005-10-15 01:28 pm UTC (link)
You are an amazing writer. I hope some publisher will print this journal for others to read and learn. When my daughter had her jaw wired shut 22 years ago, I could find almost nothing to help me figure out how to feed her. I had to figure it out by trial and error. You are going to be a wealth of information for helping others.

By the way, I hope you are able to enjoy this fabulous weather.

Sharon Nardo
Jasper

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Bless your heart...
(Anonymous)
2005-10-15 02:15 pm UTC (link)
That's a very southern thing of me to say, I admit, but this Georgia girl says, " Bless your heart." Someday, you'll look back on this experience with the same awe all of us readers have.

You are so strong! I admire you for keeping your sense of humor during this time, and all of us who check your live journal daily may not have met you, but you are in our thoughts and prayers.

God is good. He will get you through this!

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Your Spirit
(Anonymous)
2005-10-15 03:09 pm UTC (link)
I talked with your Dad yesterday. Your whole family amaze me, You all have a spirit that I admire very much.

Max T

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Treatments
(Anonymous)
2005-10-15 04:34 pm UTC (link)
Hans, thanks for keeping everybody updated - as someone else said, we all check each day to see if you have posted something. Just know you have a lot of people pulling for you, even those of us who haven't met you. I also agree your next career should be writing - you are great at it.

Lynda Dockery
Kennesaw

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You're right, take it slow...
(Anonymous)
2005-10-15 04:42 pm UTC (link)
Take the eating thing slowly.... Treat your new tummy like you would a newborn baby's tummy. Soft, mushy foods, things easy to swallow, nothing too tough. Slowly work up to more 'difficult' foods. Like I said, like a newborn. We're still praying for you!

Michelle

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(Anonymous)
2005-10-15 10:59 pm UTC (link)
I have been reading about your incredible story. My mom has leukemia and her hemoglobin has been as low as 4.2 -- due to religious convictions she is unable to accept blood. Well you become very knowledgeable fast in a situation like that. There are a couple other things that your doctor can use to raise your hemoglobin -- the main one is epogen (mom was on 40,000 IU - the standard dose is a shot weekly, but you can take it more often than that), the other is the iron dextron that you were just given, but also taking 3 -- 1000 mg units of folic acid daily helps as does a good multi vitamin daily. My mom went through 14 months of chemo. Was told many times that she was probably going to die -- there were very slim chances of remission etc. Well, she is about to celebrate her 3rd year in remission. My best advise -- don't be afraid to go against protogol -- if you have to. My mom was deathly ill after each of her 8 hour doses of chemo, we asked if her dose could be lowered and were told that it was against protocol for her type of cancer -- I kept asking and finally they agreed to reduce the dose. It did the trick. It was a terrible road to travel, but the outcome was great. My other advise -- don't let your lows get too low or your highs too high. We would get all excited if her counts would be good one day and then the next day they would all fall -- mostly due to the chemo and then we would all get so depressed. Just take a day at a time, you'll get though it and you will come out an even stronger person for it.

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(Anonymous)
2005-10-16 12:03 am UTC (link)
ooooo IRONMAN! pretty amazing isn't it?
i read melissa etheridges post in the paper today about how she chose to use theraputic marijhuana(sp?) instead of all the other pills offered for the side effects of chemo for her breast cancer therapy... she says she uses it until it feels better, then stops using it...lol...she did not say smoke, toke or anything like that....lol...my hubby says its supposed to stop nausea and increase appetite...hmmmmmm.

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(Anonymous)
2005-10-16 03:21 pm UTC (link)
HANS if you go the weed route let me know...

bong party

poker plyr

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Hope you are having a Better Day
(Anonymous)
2005-10-16 11:35 pm UTC (link)
Thank you for taking the time to keep your "new family" informed of your progress. Wish there was more to do than pray for you and your dear family and send happy and loving thoughts. Hope you were able to enjoy some of the beautiful mountain air this weekend. Love and prayers from your home town.

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(Anonymous)
2005-10-17 04:42 am UTC (link)
Sounds like you have been having quite a crappy time since I last checked in on you (I can tell because you said "bastard"! - not usually part of your squeaky clean god-fearin' vocabulary!!). Nausea is the worst huh? I'd rather deal with pain any day. Hope that this is all a distant memory for you before you know it.

Hugs - Sharon from Brisbane.

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Three Down
(Anonymous)
2005-10-17 12:08 pm UTC (link)
Hi Hans,

I am pulling for you to get through all this and be on the road to a speedy recovery! You are such a strong person to be dealing with so much, and still keep in contact through your journal. Keep on the bright side, and God will lead you through!

Hang in there!
Lisa, Jasper ETC

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(Anonymous)
2005-10-17 01:52 pm UTC (link)
It never ceases to amaze me that you have continued to have the strength to keep this journal going. We appreciate the effort you make to do so. Valerie

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Three down
(Anonymous)
2005-10-17 02:36 pm UTC (link)
That must be the hard part, having to go everyday Monday through Friday for treatments. At least you have the weekends to look forward to and being through with the treatments sooner this way. I am a breast cancer survivor and had chemo and radiation but it was a breeze compared to what you are going through. I really feel for you and like the others check to see if you have posted everyday. Hope the nausea medicine starts working.

Marty & Dave "Cad Club"

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You encourage me
(Anonymous)
2005-10-17 08:07 pm UTC (link)
Hans,
Just reading what you are going through encourages me. Your writing is inspiring and funny all at the same time. You are really a go-getter. Keep up the good work. Before you know it you will be pass this stage and on to better things.
We will continue to lift you in prayer.
Friends in Ellijay

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Hang In There
[info]jim1411165
2005-10-17 10:45 pm UTC (link)
Hi Hans,

I've been meaning to read your journal since I knew that you started one and I just logged in and read it all this afternoon. WOW, sounds like you've been through the mill as they say but it does sound like you're hanging in there pretty well all in all. I was at the Marble Festival parade and was so glad to see you and your family in it leading the way. You're a very inspiring guy and Amy is too and I'll definitely keep you, Amy and your little ones in my thoughts and prayers every day. Thanks for keeping all of us up to date on how your progress is coming. Hang in there and remember anytime you get a little down that you've got all of us pulling for ya.

Jim

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