hansrue ([info]hansrue) wrote,
@ 2005-10-12 20:51:00
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Infection boy starts his chemo...
I'm starting to realize that my health is much like a Rubik's cube. You may be able to get one side homogeneous, but in order to solve the whole puzzle, you may have to mess up what you've already accomplished. Such is the case with my 10 day affair with Flagyl. At first, I praised the medication as my William Tell...my hero in a pill. Within the first 2 days of taking the bitter white pills, my severe cramping began to subside and my bathroom traumas ceased. Sounds good. But the known side effects for Flagyl read like the menu at the Cheesecake Factory...it's insane! What's even more insane is that, with the exception of the RARE side effects listed, I practically have them all: fever, muscle aches, dizziness, headaches, sore throat, and a fresh crop of ulcers in my mouth. It appears that my supposed hero in a pill is a nasty little bastard that has now allowed a strain of fungus to bloom in my body. I'm now taking Diflucan to combat the fungus. I'm not up to speed on the side effects of THAT medication, but I imagine it has something to do with one's clothes mysteriously turning inside out...or perhaps my eye balls will migrate to the top of my head. Why not?

Despite my growing list of ailments, we started the chemo. I have a small pump attached to me right now (through my port) that's keeping a steady flow of the drug 5FU coursing through my blood. I'll keep that pump until Friday and then they'll hook it up again on the following Monday and we'll keep doing that for the next 5 weeks.

In addition, I also had my first blast of actual radiation. There's no pain, but it is really freaky if you think about it. I'm going to be zapped every Monday through Friday for the next 5 weeks. The doctors are cooking the chef.

Time for some yogurt. The idea of swallowing anything sounds pretty lame, but I need the bacteria to help combat my new infection.

Much love and respect to you all...

Hans



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Yehhhh!!
(Anonymous)
2005-10-13 01:24 am UTC (link)
Well I'm glad to hear that nothing disturbing went on today down there. Its to the point now that it seems every time you talk to anyone in the medical field they tell you something else a little on the crazy side!! I hope that you can keep it up!! We'll pray that this will be a pretty easy(or as easy as it can be)process for you. One day down 24 to go!!! Yehhh!! Well I must get back to working on the December schedule. Oh what joy! I talked to Scott this evening and he said he spoke with your Mom. Let me know if she needs anything else.

He he...

Karena

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(Anonymous)
2005-10-13 02:09 am UTC (link)
HANS:

WhAT A GUY! After working with doctors for twenty years, I realize that they know some things {we think we know but don't] and things will work out alright. I'm glad the chemo/radiation went well

Our thoughts and prayers are with you and all of your family

Max

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Better to Laugh than Cry!!
(Anonymous)
2005-10-13 02:12 am UTC (link)
Hans, you amaze all of us. You make us laugh at all your misfortunes and I hope sometimes you can laugh at yourself while you give us the details. I told your Mom tonight you are definitely a writer whether you profess to be or not. All this has to help while you put up with the misery.
I wish I could do more, but I know I cannot, so I shall continue my
prayers on behalf of you and your whole family, especially including your Dad now. So hang in there and it will get better.
Mary Smith

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(Anonymous)
2005-10-13 02:53 am UTC (link)
Hans-
Glad to hear that the Chemo and Radiation went well and that they were able to start all of that despite the other mess. I can hear in your voice that you are really annoyed by it all. It certainly is understandable. You are a champion (although you may not feel like one)and even champions are allowed to be annoyed.

As for the "guy with cancer" comment, I have a goofy spin on who you are having not seen you in 15 years or so. How about the Star Wars guy, shortest hair in the world guy, Cavaricci guy, singer for The Sublime and Daddy of Jaws the Arowana. Just a little blast from the past.

Keep your chin up. There are so many people pulling for you.

Georgia McGinnis

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Encouragement
(Anonymous)
2005-10-13 03:01 am UTC (link)
Hans, I've just finished reading your Wednesday journal entries. I love your spirit and sense of humor. Keep it up. As we travel home to Jasper, I am happy to know that at least on the cancer side you are getting better. Hope the side effects of the medication quickly go away and you have none with chemo and radiation.
Take it one day at a time and keep that sense of humor. You can do this and many people are pulling for you.
Our thoughts and prayers are with you. Hettie and Alvin Young

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mouth ulcers
(Anonymous)
2005-10-13 04:04 am UTC (link)
You may already know this, but the absolute best treatment for mouth ulcers is kenilog in orabase. The orabase keeps the kenilog glued to the inside of your mouth. It's best to use it overnight, or when you don't want to talk. Having your inner lip glued to your gum tends to make talking difficult, but it's worth it.

Sharon Nardo
Jasper

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(Anonymous)
2005-10-13 04:36 am UTC (link)
Five weeks. It will seem like an eternity....but before you know it this will all be just a bad memory...with some amazing, scarey, gross and funny tales to tell.

You can do it! You can!

Praying and cheering in Wisconsin
Donna

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You can do this!!!
(Anonymous)
2005-10-13 09:45 am UTC (link)
Keep your sense of humor...your analogies are wonderful and as good for you as your regimen of drug therapy.

We continue to pray for you, your family and your host of medical providers. Stay safe on the highway! Those daily trips for treatment can be treacherous!

You can do this!!! LOL from your CASA family

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(Anonymous)
2005-10-13 10:43 am UTC (link)
Hans,
I can't imagine the daily horrific battles that you are enduring each day. I wish there was something I could do to ease this awful journey for you. God's speed and I pray His comfort to be on you and that you are soon cured for good.
John W.
Accounting-ETC

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[info]dentednj
2005-10-13 02:00 pm UTC (link)
my dad did great during the beginning of his radiation treatments, then felt crappy at the end... it took maybe 1-2 weeks to see him looking more active again...

u sound like a walking pharmacy man! i am picturing that scene from disneys fantasia in my mind, when the brooms help out in the beginning cleaning the floors with buckets of water, then they multiply more and more and soon are out of control and the water becomes a sea...with mickey bobbing on top trying to figure a way to stop them multiplying!

i read a book by an md who won awards for her use of diet (and flax seed oil) to assist cancer patients, and others who were extremely ill... since then i have added flax seed oil to mine, and my sons yogurt... it adds a nice nutty taste...actually great! the doc said flax seed oil, is best taken in combo with milk proteins...dr.johanna budwig ... very lil paperback book...i would be happy to mail to you if you are interested and cant find it through the web... :OD

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Doctors Cook the Chef
(Anonymous)
2005-10-13 03:45 pm UTC (link)
I can't believe all that you are going through, and still making great jokes like "Doctors Cook the Chef". We are thinking of you and hope things get better soon!

Dave and Marty "Cad Club"

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(Anonymous)
2005-10-13 03:59 pm UTC (link)
Hi Hans and Amy. I'm glad they've begun the chemo and radiation. Hans, you seem to have such a great outlook on your trials. Keep your spirits up-I'm a firm believer in mind over body-or illness! Amy, keep up the good work as caregiver. We are all continue to keep you and your family in our thoughts and prayers. I heard about your Dad last night at church. Hope everything is going well with him. I was with a group Tuesday night at the Woodbridge Inn, and it was so quiet without your Dad!
Jan Simpson

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chemo
(Anonymous)
2005-10-13 05:20 pm UTC (link)
Hans,

You hang in there!!!! I know better days are ahead. Prayers are with you.

Lisa, Jasper ETC

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(Anonymous)
2005-10-13 08:38 pm UTC (link)
Sending you both love & best wishes from across the ocean.
Keep it up, superman !
xxx
Lyn

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Enough already!!!
(Anonymous)
2005-10-14 01:36 am UTC (link)
I think it's time that you actually got to rest and have a glass of iced tea!

Keep up your great attitude! You can get through this! Some day you will be able to use your experience to help someone else in a similar situation.

My prayers are with you!

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Prayers & Wishes
(Anonymous)
2005-10-14 01:58 am UTC (link)
Hans,

Please just know that you and your family continue to be in our prayers and thoughts each day. You are an incredibly strong and brave guy! Our admiration for you is limitless, and hope all this will come together soon to combine to be your cure.

Susan & Tom Lindsey

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Amazing !
(Anonymous)
2005-10-14 02:23 am UTC (link)
Hans you continue to amaze me with your writing genius. Your ability to take us right along with you for these unbelievable episodes is incredible. I wish each one of us that reads your entry could take one of your treatments for you! You so deserve a break. My thoughts and prayers will continue to be with you and your wonderful family.
J Bauer

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(Anonymous)
2005-10-14 11:47 am UTC (link)
you'll never know how much i am praying for you. you've sure had a
rough time of it. maybe after the cooking and chemo you can finally
see a better road ahead of you. it's good to see you can still keep
your sense of humor through all this. i think that is really
important. try to keep your spirits up and remember "this too shall
pass". God bless you and your family. the prayers will certainly
continue.
dick & maryellen

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Prayers Continue
(Anonymous)
2005-10-14 11:55 am UTC (link)
Your posts sure do make me stop and think and appreciate the smallest of conveniences. I wish you didn't have to endure this, but I just don't know if you realize what you are giving to those of us who are keeping vigil with you. Your resilience,strength and humor astound me. Prayers are on my lips to God's ears each day.

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Hang in there Hans!
(Anonymous)
2005-10-14 12:23 pm UTC (link)
It's hard to believe you have all that chaos going on inside. When we talked after the Marble Festival Parade I had good feelings(still do) that you were on the mend. I guess the "mend" is more of a long term thing. We are all praying for you and hope things get easier for you. I know what you are getting into is going to be rough, but keep the FAITH.
Love,
Arthur, Boo, Virginia, and Jack
Oh yea...Jack had a tree jump in front of his dirt bike monday and he now has not one but TWO broken arms...not a fun way to get out of school.

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Hang In There!!!
(Anonymous)
2005-10-14 02:45 pm UTC (link)
Easy for me to say since I'm not in your shoes (or hospital gown). You and Amy are in my prayers. There has to be light at the end of this long tunnel!

Mary from SPMB

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Mouth ulcers
(Anonymous)
2005-10-14 07:30 pm UTC (link)
http://www.ora5.com/

Here is a product that helped me tremendously when I had mouth ulcers. Your dentist may have it or you can order it online. I want you to know that you are in our prayers and that we wish you the best. I am one of the gals from Jenn's Salem Place.

karenwoo

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