hansrue ([info]hansrue) wrote,
@ 2005-10-12 06:01:00
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Maybe chemo, maybe not...
Hello everyone...

Just a quick note to thank everyone for the well wishes in the face of my pending chemo. Amy and I have a doubt or two that they'll start it today though. The Flagyl medication that I've been taking for the C. diff infection can have some nasty side effects...like fever, body aches, sore throat, sleeplessnes, etc. I somehow managed to get all of those, plus 2 nasty mouth ulcers. Of course, all of these side effects can be caused by chemo as well, but we've read that there can be a drug interaction between the chemo (in my case 5FU) and Flagyl. SO, I know I'll be having the radiation, but I'm not too sure about the chemo.

I told Amy today that I feel like I’m at a buffet. Last week I said, “Let me have that plate full of abdominal cramping, a side of diarrhea…and…oh yeah….some terrible bloating. Thanks”. Now this week, I’m back in the line saying, “I think I’ll try some fever with maybe a side of infection for my j-tube and let’s round it all off with some muscle aches and headaches. For dessert, I’ll be having the mouth ulcers…to go.”

I'll try and update the journal this evening with the verdict.

Best wishes,

Hans



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(Anonymous)
2005-10-12 11:45 am UTC (link)
I'm crying again. You deserve a break! With all the thoughts and cares for you, you should be able to breeze through this. Best wishes and hugs - Valerie

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The buffet
[info]2ndavemusic
2005-10-12 11:51 am UTC (link)
Man, I wish we could carry your tray so you could get a seat at a nice table by the window.

Peace,
C

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Sometimes life is just not fair!
(Anonymous)
2005-10-12 12:43 pm UTC (link)
I'm so sorry that you just CANNOT catch a break....maybe all the bad stuff is coming at one time, and then you'll live to be 100 and never be sick again a day in your life! Hang in there, and know that thousands of people are praying for you, and eventually that's GOT to count for something!

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Wow. You could write a book...
[info]heidimm2
2005-10-12 01:32 pm UTC (link)
and the book WILL have a good ending. Seriously - you're a good storyteller, and it's important stuff. It's all very interesting to people who have some sort of connection (no matter how tiny) to you, but I think it'd also be good for a wider audience. Just something for you to think about.

I hope all of the pain and discomforts of today make the pleasure of feeling well all the sweeter.

Heidi from Jan2000 ParentSoup board

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(Anonymous)
2005-10-12 02:07 pm UTC (link)
Hans, I'm so sorry things are going so bad right now. Here's hoping there's a silver lining to this dark cloud!
Jan Simpson

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Wednesday's Journal
(Anonymous)
2005-10-12 03:01 pm UTC (link)
Hans,

I was just reflecting on how creative, funny, and entertaining you can be in your journals in the face of health issues that would crush and defeat the average guy...then I remembered...you are not the average guy...not by a long shot. To tell you to hang in there seems trite and totally unimaginative. You have hung in for so long. Bless you and your wonderful sense of humor! You are constantly in my thoughts and prayers!

Much love,
Mrs. C.

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Cyber hugs!
(Anonymous)
2005-10-12 04:32 pm UTC (link)
That's probably about all you can bear at the moment, I'm sure!

Praying for these new issues...

Your mad PA friend,

Cindy<><


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Thursday, October 12, 2006
(Anonymous)
2005-10-12 10:15 pm UTC (link)
How about a lunch date? Our treat...you pick the place. We'll share success stories...you can go first.

Until then, we will continue to lift you up in prayer; listen for your progress and send our love and support to you and your family.

Appalachian CASA

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Tomorrow will be a better day
(Anonymous)
2005-10-12 11:50 pm UTC (link)
So sorry you are going through such a difficult time. I know things will be better soon. We continue to pray for your strength, courage and comfort. Yesterday I heard Olivia ( a thirteen year survivor) say that she thought of chemo as golden drops of cure. Sounds good to me. Love and prayers from your hometown.

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You Deserve Better
(Anonymous)
2005-10-12 11:52 pm UTC (link)
I am crying for you. You have been through so much and you know there is much more to come. I can relate to your problem of antibiotics destroying the good bacteria in your stomach. I spent a week in the hospital with colitis because of this problem. However, my problems were minor compared to yours. I will continue praying for you and Amy. Your journals are an inspiration to all of us.
Keep the faith.
P.McNair in Dallas

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faith
(Anonymous)
2005-10-12 11:53 pm UTC (link)
hans and amy,
i just read today's journal please don't lose faith. GOD WILL TAKE CARE OF YOU!!!!!!! I WILL KEEP YOU AND YOUR FAMILY IN MY DAILY PRAYERS.........

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relief for those nasty mouth ulcers
(Anonymous)
2005-10-18 12:46 am UTC (link)
The best treatment I have found for those nasty mouth ulcers is a mixture of benadryl liquid and Maalox or Milk of Magnesia-just dab it on the ulcer and it coats and heals faster. Hope this helps you as much as it does me when I have those nasty little things!!!

God Bless!!!

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